This need has been met, thank you Gonzales’s!

If you have been looking for an opportunity to help, we could really use some disposable baby spoons which are available at Wal*Mart, Target, and other stores.

This may be a periodic need, so we’ll accept the first offer that comes in. And will repost later as necessary.

Thank you all for your dedication in prayer and provisions, we are very grateful and touched.

God bless you all!

hi there! sabbath at home is very different from sabbath at sabbath school. but i did choose to wear a pretty dress and sweater at home and we had a little sabbath school right here my dress was pink with white polka dots on it. mommy and daddy and grandma said i look very cute

i’m still very weak and tired today. i always prefer to sit on mommy’s lap and today we put in praise songs and kids on our dvd and that really calms me. i’m not sure how much everyone thinks i understand about what is going on around me, but i do know a lot more than most people think! i tried couscous for the first time today–and it was good with the beans and stuff with it. i’ve really enjoyed bread and grapes and the little breakfast links! yum! i still like my pizza too! mommy and grandma and daddy are all trying very hard to have the healthiest food available for me and mommy too, since my brother or sister is inside her. i like healthy food too, so it’s been good to have that around.

we don’t sleep much at my house these days, and everyone is very tired. i was so tired today i actually told mommy i wanted to go take a nap. daddy got a short nap too

we’re just going to have a relaxing evening (well, i’ll keep them all very busy!), and try and get more sleep tonight.

thank you for your prayers and the food…Jesus is really taking care of us and He’s using some really wonderful people to do it!

nite!

hi there! you know how i got a blood transfusion on wednesday?? well it really helped with my energy level! thursday was a long day ’cause i had more energy, but i didn’t really have more strength, so it’s not like was i was able to play and run around, but i was definitely paying a lot more attention to everything. and then thursday night, i only was able to sleep for 2 hours–so nobody in the house was able to get much rest either. so today we were all tired from not sleeping much. and since i’ve figured out that the medicine really makes me feel yucky, i’ve been trying to convince my mommy & daddy & grandma i shouldn’t have to take it if i don’t want to…but they always make me take it anyway

today was the day the medicine they gave me on wednesday really made me tired again. so i spent all day in mommy’s arms mostly, sometimes i went to grandma too. we’re trying to get some rest tonight since we’re all very much exhausted…

so glad tomorrow is sabbath, i hope i start to feel better again soon!

please remember to keep praying about next wednesday and the bone marrow test results. thank you so much for everything! and thanks for the food you’ve been bringing to help us out. the healthier the better for all of us!

nite night!

we had a long day today. i was only supposed to be at the clinic for 1-2 hours. but we ended up being there for 9 hours! i had to get a transfusion of blood which took an extra 5-6 hours.
the good part is the doctor says my blood counts on white blood cells and platelets are good. my hemoglobin was at 7 and they said this is probably why i don’t have much energy and strength. when they finished with my treatment i kept saying HOME HOME HOME. i made it very clear i did not want to stay at the hospital. when we were getting close to home i started saying HOME again.

i’ve been sleeping for hours every day, can’t stand up by myself at all and i can barely sit up in bed either i guess this is supposed to be the low point in energy, but the blood transfusion is supposed to help give me more energy. i sure hope so, it’s been so hard because i can’t do much and i don’t really feel like doing anything, but my it still think a lot and remember what it was like to run and play and feel better. i can’t wait until i can do that again!

i told mommy, daddy and grandma that “the medicines are YUCKY” on the way home. and tonight i decided i did not want to take them anymore because i think maybe it’s making me feel worse than i would if i didn’t take them, so i gave mommy and daddy and grandma the hardest time with medicine i’ve ever given them. i may have be reacting so badly also because right after my medicine i had a bad case of diarrhea, which was also hurting my tummy.

mommy, daddy and grandma are so tired too. please keep praying for us, this is so much harder than we could have know it was going to be. but we pray to Jesus every night and sometimes i can even tell he’s with me

i had another bad time late last night. i cried a lot and for a long time because i was in so much pain mommy and daddy gave me every medicine they could think of…finally i was so exhausted i just went back to sleep. i was doing better this morning. i was talkative and had a little bit of energy, but around 11:30 mommy realized she forgot to give me my medicine. so she gave them to me, and that’s when i started to feel all yucky again. i laid down a lot this afternoon for several hours, and i don’t have much energy and am just not interested in much. my grandma thinks she might have a blood clot in her leg so i hope she and mommy get that taken care of. i don’t know much about blood clots, but everyone seems very serious about it.

tomorrow is my next appointment for the chemo push in my port-a-cath into my heart. the good news is that i don’t have to get the spinal treatment so they don’t have to have me go to sleep which means mommy and daddy don’t have to cut off my food and water supply tonight–which is good ’cause i’ll probably be hungry before my appointment.

tomorrow is day #22, which means i’m one week away from my last bone marrow test in phase 1. if i am at 0% cancer cells, then i am in remission and phase 2 means less chemo and less PEG shots, which mommy and daddy say are kinda dangerous–so that’s good. less chemo means i should fee lots better very soon! so please keep praying for me and my test next wednesday, day #29.

thank you for visiting me here and for all of you prayers and sweet comments…it means a lot to my mommy and daddy and of course me!

well, that’s about all the energy i have right now, i’d better go lie down so i can have a good morning. nitey nite!

hello there. i did feel better this morning and really felt like talking a lot. i chattered and had lots to say. but later, i started to lose my energy…so i just layed against mommy’s chest and rested. i wasn’t even really that hungry today.

i’m gonna try to go to bed early, since i only took a 3 hour nap today.

wednesday is my next chemo treatment in the hospital. i don’t have to have a spinal, just a push through my port-a-cath. that’s it for now…please keep praying–i’m not acting like my old self and it’s really hard for all of us. thank you!

nite nite!

hi…it’s been a hard two days. i’m so tired and i don’t feel like doing anything i’ve spent most of the last two days on mommy’s lap or grandma’s lap or daddy’s lap. sometimes i try to walk, but its really hard and it makes me cry because i want to so bad but it hurts! they give me medicine for my pain, but it’s still really tough. i think this chemo stuff is really hard on me…

please keep praying. it’s been really hard on all of us and we’re all so tired. thank you so much, i know you already are and will keep on praying.

hopefully i’ll be able to tell you i’m feeling better tomorrow…i can always hope so!

nite!

hello again. i didn’t get to wake everyone up last night ’cause i was too sleepy. i’ve been having a much easier time ’cause i’m getting a medicine for pain that helps me walk so my muscles stay strong sometimes it makes me sleepy too though–but mommy says the more rest i get the better. so today was an even better day…i got to walk around and play more than yesterday

guess what tomorrow is?! mommy’s birthday!!! i’m so excited ’cause we’re gonna have cake and ice cream too! don’t forget to tell my mommy happy birthday! i think i heard daddy say he’s gonna take her out to dinner

you know what else? daddy got a call from the doctor and they already have my test results…they say i can remain in the low-risk group for now because i’m under the 5% mark–probably at about the 2% mark they said. now today is day 17 of a 28-day treatment. if i am completely free of cancer cells by day 28, then i remain in the low-risk group and therefore get a less amount of PEG shots and chemo for phase 2. so thank you all so much for your many prayers–we know they made a difference and will keep making a difference!

well, i should get to bed–i want to feel good enough to play with grandma and mommy and daddy tomorrow!

nite!

hello boy am i hungry all the time! daddy says i’m eating them out of house and home–whatever that means! i like to have pasta or pizza around 2:30am, so mommy and daddy have been really great about getting me stuff. i’m really craving salty foods and they say i’m puffing up because i’m “retaining water” another thing i don’t know about (but mommy says i’ll understand someday!).

the medicine they gave me on wednesday in my port-a-cath is called vincristine. plus they took some bone marrow to test, we probably won’t get those results until monday…as for medicine, remember how they were treating me for fungus in case that’s what my problem is? well, that’s either a 60-90 day treatment, but could go up to 6 months! and they’ve given me some more medicine to take care of the other medicine…it’s all very confusing, but as long as they keep using the orange syrup, i’m trying to make the best of it! everyone says i’m really brave and good about taking all the medicines they’ve been giving me.

today, i walked around some more, which is really neat! i’ve been wanting to do more of that, but until yesterday i really couldn’t do it very well. it’s still really hard and i can’t do it for long periods of time, but it does feel good

well, i’d better get some sleep if i’m going to wake up mommy, daddy and grandma for my pasta at 2:30am…too bad i can’t wake all of you up too–we could have lots of fun eating pizza together!
nighty nite! *baby snore*

hi there! guess who’s feeling a tiny bit better today? me! i had to go down to the hospital and they took bone marrow for the test and i thought i was gonna have to get the treatment in my spine, but they didn’t the only other thing they had to do was give me medicine in my port-a-cath. i can’t say that it was fun but at least i didn’t have to stay long. i got really excited when we got close to home, i’m so glad we don’t hafta stay in the hospital anymore.

papa (grandpa) left today…he had lots to do at home–he has a lot of people that need him there. i know he’ll come back to see me again soon.

i was was able to walk just a bit today, and that made me very happy! i even did a puzzle, well mommy helped a lot grandma and me played with one my other toys and today was just a better day. everybody got to rest and relax a teeny bit too because i wasn’t so upset and having a hard time, so that was good. and tomorrow should be another good day too, since i don’t have to go anywhere–we can just stay in and relax.

please remember–this is not the best time for visitors, we’re all so tired and exhausted. there will come a time perhaps when we can have visitors, but right now my white blood count is so low that my immune system doesn’t have anything to work with if i’m exposed to any germs.

well, i’ve got to get some rest–hopefully i will get enough rest and sleep through the night so mommy can too!
nighty nite!