Update – March 12, 2007 (phase 1, day #6)
good morning! i have to get a scary shot today…its called PEG and they divide it in 2, and stick me in both of my legs! i don’t think i’m gonna like that at all! at least i’ll have my mommy, daddy, grandma and grandpa to comfort me afterwards.
everyone’s been praying so much–thank you! mommy and daddy keep saying they really need prayers today for this shot.
also, they’re definitely gonna have to fix my port-a-cath, and i know that’s not gonna be any fun.
thanks again for all your gifts, prayers and food for my family, they’re so busy taking care of me–it’s good others can help take care of them!
i’ll write more later!
*blowing kisses*
okay, they’re gonna fix my port a cath at 2:30pm, and while i’m in recovery (’cause it’s a surgery and they’re gonna make me take a nap) and still mostly sleeping, i will get the PEG shots–remember to PRAY, please
mommy and daddy are going to meet the doctor this afternoon. he’s gonna tell them what the next 90 days (that’s a long time!) will probably be like with treatments. i get another spinal on wednesday day #8 another on day #15 and it will be new medicine. mommy and daddy should know how the PEG worked this friday. and i’m gonna have to have some more PEG shots sometime soon.
they didn’t get me in to surgery until 4pm and i was soo hungry! but they wouldn’t let me eat before. i guess it went okay…when i woke up i called for my mommy and she came to me right away
they gave me the PEG shots while i was still pretty sleepy and i don’t really remember that part at all and i’m so glad. what i do remember is that they had put an IV into my foot and i didn’t like that AT ALL. i kept telling mommy to take it off, but she wouldn’t and said i had to leave it in until the doctor took it off. i knew it just had to come off, so as soon as we got back to my room, i told daddy, grandma and grandpa hoping that one of them would take me seriously! finally, someone came and took it out and then i was happier.
9pm – it’s time for me to go to sleep, but i wanted to tell you what mom and daddy found out some more info. there are 3 categories of risk and though i have most of the stuff that puts me in the low-risk, i don’t have all of it, so i’m in the medium risk category. depending on day #8 and day #15 results and a random process my treatments may double…if i don’t show signs of remission at day #29 (after the complete 28-day cycle, then i get put into the high risk category. i know it all sounds kind of scary, but right now i’m doing really well. please keep praying!
and you know what else? i’ve been having so much fun with this car they brought to my room for me to play with! i like to get in and drive it around the room. everyone says i’m a great driver
okay, mommy says i’ve gotta get some sleep now…i think that’s a good idea. but only after we all sing some of my favorite songs, like happy home, and if you’re happy and you know it and…*baby snore*
I’m sure everything is going to be just fine. I’m praying reeeeallly hard so that God restores your mom and dad’s energy. You have a lot of people praying for you, my kids and I have a white board with your name on it, so that everytime we walk into the kitchen (which is all-the-time!!!!) we say a little prayer for you and keep you in our thoughts all the time. BIG kissess!
From: Amy, Martin, Edwin, Gerson and Junnie!!!
Comment by Amanda Diaz — March 12, 2007 @ 9:26 am
I’m sorry you had a rough day, kiddo. I hope you feel better soon and that everything went smoothly. I’m still praying for you (mom and dad, too)!
xoxo,
Julie
Comment by Julie — March 12, 2007 @ 5:02 pm