hi! boy have i got a lot to tell you…hmm, where should i start? how about friday night? after 3 days of feeling awful sick and tired i finally started to perk up a little bit and wanted to look at some books and play–just a little. mommy and daddy and grandma and papa (grandpa) were all so relieved about that. i could tell they were really worried because my first days home were miserable days for me, which i think made it really hard on everyone else

but guess what else happened on friday? we got back my bone marrow results…and my blood marrow went from being 90% cancer to only 20% cancer! and, they found something else in my dna that makes it possible for me to be put in a low risk group in my program…the final factor is my next blood marrow test this coming wednesday (we’ll have those results a few days following)–my cancer needs to be at or below 5% (i think its called remission) or i’ll be put into the high risk group. its the difference between 8 weeks of chemo or 2 weeks of chemo (and more PEG shots) for phase 2, so we’re praying lots for my results to be 5% or less–could you pray for that too?

sabbath was an okay day. i still felt yucky, but my daddy’s family came to visit…so it was distracting. we tried to rest and some of us were able to get a nap in for a little while, but then i started feeling awful again and i think i woke everyone up. i’ve noticed that it takes a lot of people to help me. mommy’s gotta hold me a lot, and everyone else has to help her with things she can’t do ’cause she’s holding me.

today has been my best day home so far. i’ve been hungry all day–and i’ve eaten a lot too! soup, crackers, smoothies, juice, water and lots more! i’m still kinda tired and i don’t have lots of energy. i can’t wait until i start to feel better, i’ve got lots of new toys and stuffed animals to enjoy now i still prefer to sit with mommy most and am waiting to feel better before having adult visitors, still can’t have my kid friends over yet. i have a blood test tomoorow to find out my blood cell counts so i gota go to bed and get some rest before that..

nighty nite!