i had another bad time late last night. i cried a lot and for a long time because i was in so much pain mommy and daddy gave me every medicine they could think of…finally i was so exhausted i just went back to sleep. i was doing better this morning. i was talkative and had a little bit of energy, but around 11:30 mommy realized she forgot to give me my medicine. so she gave them to me, and that’s when i started to feel all yucky again. i laid down a lot this afternoon for several hours, and i don’t have much energy and am just not interested in much. my grandma thinks she might have a blood clot in her leg so i hope she and mommy get that taken care of. i don’t know much about blood clots, but everyone seems very serious about it.

tomorrow is my next appointment for the chemo push in my port-a-cath into my heart. the good news is that i don’t have to get the spinal treatment so they don’t have to have me go to sleep which means mommy and daddy don’t have to cut off my food and water supply tonight–which is good ’cause i’ll probably be hungry before my appointment.

tomorrow is day #22, which means i’m one week away from my last bone marrow test in phase 1. if i am at 0% cancer cells, then i am in remission and phase 2 means less chemo and less PEG shots, which mommy and daddy say are kinda dangerous–so that’s good. less chemo means i should fee lots better very soon! so please keep praying for me and my test next wednesday, day #29.

thank you for visiting me here and for all of you prayers and sweet comments…it means a lot to my mommy and daddy and of course me!

well, that’s about all the energy i have right now, i’d better go lie down so i can have a good morning. nitey nite!