we had a long day today. i was only supposed to be at the clinic for 1-2 hours. but we ended up being there for 9 hours! i had to get a transfusion of blood which took an extra 5-6 hours.
the good part is the doctor says my blood counts on white blood cells and platelets are good. my hemoglobin was at 7 and they said this is probably why i don’t have much energy and strength. when they finished with my treatment i kept saying HOME HOME HOME. i made it very clear i did not want to stay at the hospital. when we were getting close to home i started saying HOME again.

i’ve been sleeping for hours every day, can’t stand up by myself at all and i can barely sit up in bed either i guess this is supposed to be the low point in energy, but the blood transfusion is supposed to help give me more energy. i sure hope so, it’s been so hard because i can’t do much and i don’t really feel like doing anything, but my it still think a lot and remember what it was like to run and play and feel better. i can’t wait until i can do that again!

i told mommy, daddy and grandma that “the medicines are YUCKY” on the way home. and tonight i decided i did not want to take them anymore because i think maybe it’s making me feel worse than i would if i didn’t take them, so i gave mommy and daddy and grandma the hardest time with medicine i’ve ever given them. i may have be reacting so badly also because right after my medicine i had a bad case of diarrhea, which was also hurting my tummy.

mommy, daddy and grandma are so tired too. please keep praying for us, this is so much harder than we could have know it was going to be. but we pray to Jesus every night and sometimes i can even tell he’s with me