hi there! i’ve been so busy with mommy and grandma, trying to play and walk as much as i can, i almost forgot to write and tell you what’s going on!

we went to church yesterday, but i feel asleep on the way and slept through sabbath school! i didn’t mean to, i just must have been really tired! i did wake up for church and when it was time for the lamb’s offering i walked around (with daddy’s support) and picked up the money like the other kids! later, we went to the Relay For Life and guess what?! there were people there walking for me! the also had little lights with my name on them and i was the youngest survivor attending. it was really neat.

guess what yesterday was too? grandma’s birthday! so we all went to Olive Garden to celebrate her birthday and mine, because mine is tomorrow! and do you know what? they brought a cake and sang to me! i really liked that, and i even blew out the candle on the first try! it was really special to have people sing happy birthday to me and i’m gonna remember it for a long time

i’m getting around much better than i was, and when i can walk (with help), i’m walking on my heels ’cause that’s the part that works for me. i’m just happy to be able to move around. i’m a little worried what will happen when the chemo from last wednesday starts affecting me…i don’t want to lose the movement we’ve worked so hard to get back. i guess we’ll have to keep working on it and keep praying. i know you’re still prayinng too, and thank you for that!

well, i’ll try and keep up better, i’ve just been enjoying being active so i haven’t remember to write here as much, but i’ll try! nite nite!

hi there! guess what?! i can walk a little bit now as long as i can hold onto something like a table or the couch or something. that makes me pretty happy. i walk with a limp and i keep telling mommy and grandma “baby do it”, but i get frustrated and sad because i can’t really do as much as i think i should. i know mommy and grandma are proud of me for trying, but i think it’s really hard for them too.

we got the results from the MRI and i don’t have Avascular necrosis so that’s really good! that means that my blood vessels in my legs are okay. mommy thinks maybe i did have it, but that all of the prayers and God’s grace has healed them. the MRI did show damage to the bone of my left knee, which is why it hurts so bad, so we gotta keep praying that will get better too.

tomorrow i start phase 2 which is called “consolidation” and lasts 29 days. i will get the vincristine through my porta-cath (once) and Methotrexate in my spine (weekly), and instead of the steroid i took last time, i get an antimetabolite orally (every day). also, the naturalist mommy talked to in seattle is prescribing me some b vitamins to help me too.

anyway, i’d better go, mommy thinks i’m in bed asleep! *snicker*
please pray for me tomorrow for my next phase. nite nite!

hi there! i had a good day today! the first part wasn’t so great ’cause i had to go to physical therapy and they had a new guy i didn’t know, so i didn’t really want to work with them. but when i got home, i was able to crawl around a lot! mommy and some friends had hidden some of my toys and stuff under the staircase, but mommy opened it up and i crawled in and pulled out some fun stuff to play with. and later, i even walked with mommy’s help!! i could take almost 5 steps before my legs gave out, but i wanted to keep trying, so we did. it does hurt me a lot, but i just know that i’m gonna walk again and really want to work on it.

grandma took me to the park and we played a lot. i got go down the slide lots of times–i really like that!

tomorrow i’m gonna get my MRI, and i don’t think that’s gonna be any fun at all but i know they hafta look inside to see why i’m having so much trouble trying to walk. i just don’t like going to the hospital or clinic at all. i don’t want to have to stay there again like we did when we first found out how sick i was.

mommy has got the doctor who uses more natural medicines to talk to my doctor so they can come up with a good treatment for me that is as natural as possible for phase 2.

daddy’s coming home tomorrow and we’re so excited! i’d better try and get as much sleep as possible so we can play more tomorrow! nite nite!

hi there! guess what? i didn’t have to get chemo yesterday after all. because my legs still aren’t getting better. so they’re gonna schedule me for an MRI and take a look to see what’s going on. so mommy and i spent a lot of time down at children’s clinic yesterday. i don’t really like going there at all. i still remember being there for such a long time and i just don’t want to get stuck in there again. i’m always so happy when we leave and go home.

i’m kinda glad they didn’t start my chemo yesterday…i was not really ready to start not feeling well all over again. i’ve been in such a good mood recently and am enjoying it so much.

thanks for all extra special prayers, and a special thanks to those who have brought us dinner and helped out in other special ways.

i gotta go, i’ll try and write more tomorrow!

hi there! i’m gonna fly on an airplane today! mommy and i have been up at grandma and grandpa’s house in washington. i’ve been feeling better and better. we played a lot and i spent a lot of time in the hot tub where i could even walk around and stand up some because the water helped me.

i even crawled last night for a short distance. i know you all remember that i could do that a long time ago, but recently i hadn’t been able to move myself around at all. so the medicines have slowly left my system and that’s why i can do these things. plus, last sabbath, they anointed me again. i think jesus is helping me feel better   i even stood up for just a moment on my own two feet once with daddy!

the hardest thing is, i gotta start my chemo again tomorrow we’re not looking forward to that AT ALL. that means we’ll have to start all over again with the yucky medicine and i’ll be hungry again all the time. i think mommy was just getting used to sleeping through the night. at least mommy met a doctor that works with children’s hopsital that might help us find a more natural medicine to help with my side effects from chemo since that’s what is making it so i can’t get around on my own. so that might be something good for me soon.

please pray for me and my family…it’s gonna be hard all over again. i know you’ve not stopped praying and i know that’s why things have gone as well as they have–thank you!

bye bye! *blowing kisses*

hi there! i’m feeling better today! i have more energy, and i’m talking a lot. i’m so happy to see grandma and papa (grandpa) again! they’re so much fun! and they help mommy and daddy a lot. this morning, mommy got to sleep in while grandma, grandpa and i spent some time together. i’ve played and had fun all day we even went into a hot tub so i could splash around and i could work my legs and arms and try to get more strength back. i even stood up on my own two feet while i was in there! i still can’t do that outside of the water, but it was really good for me and we had a lot of fun! i took a 4-1/2 hour nap–which i NEVER do. i was really tired though from all the fun i had, so it was nice to rest.

mommy talked to a dr up in washington who could do my treatments for phase 2. and she really liked him because i guess he’s into more natural medicine so he could give me homeopathic (i had to have help spelling that one!) medicine to help with the side effects of the chemo instead of the other stuff that mommy thinks is making it so i haven’t been able to walk, so that’s exciting!

well, i’m getting tired again, i should probably get back to bed before mommy realizes i’m up! nitey nite!

hi there! it was good to see so many of you at church on sabbath i really wanted to walk around on my own and pick up the lambs offering, but i still needed my daddy’s help. but i liked being there.

yesterday was a nice day. mommy, daddy and me drove up to laguna beach. we had a nice time on the beach, and we even went out to dinner and that was nice ’cause we sat outside and i could look up and see the night sky.

i had physical therapy last week and mommy and i have done some stuff that is supposed to help me regain strength and use of my body. i get really frustrated because i don’t really understand why i can’t move my body like i used to. i remember walking and running or even sitting up by myself. it’s really hard for me and sometimes i cry and yell ’cause i just get so frustrated! today i was able to use my legs a little riding on my push car though, and that was neat.

mostly mommy and i have tried to take it easy today. and guess what?! i’m cutting a NEW tooth! that will make #9 it’s been a long time since that’s happened, so that is very exciting for me!

daddy left this morning really early! i can’t wait until he comes home to mommy and me again–we really miss him when he’s gone…

well, i’d better go and get some rest, i’ve been sleeping more during the night, so that’s another good thing

nite nite!

hi there! i’m feeling better today i was more talkative and i actually wanted to and got to play

I also had physical therapy today. they’re trying to help me be able to use my legs and get more strength too. it was kinda weird, but if it helps–then i’m willing to try.

grandma left today, and we miss her. i hope she is able to get some rest and relaxation now that she’s home…but probably not because i’ll bet she’s got lots to do since she’s been down here for about a month! and guess what else??? daddy came home tonight! boy was mommy happy to see him, and so was i! he had a long week and he looked kinda tired, but glad to be here with mommy and me

i hope i sleep all night tonight–i know it would be nice for mommy and daddy to get some rest together. nite nite!

well, it’s the in-between phases time now. hopefully the medicines will come out of my system quickly and the side effects hopefully will be gone soon too.

mommy made sure i was going to get some physical therapy, so i have an appointment tomorrow. they’re gonna help me strengthen my legs and body since i haven’t had the energy to use anything very much. i hope it helps and that it isn’t too hard.

grandma’s leaving tomorrow. i’m going to miss her and all the help she’s given mommy and daddy and me. i know she’s gonna miss me too, but she’s been so wonderful to take all the time that she has to be here. i guess i’ll see her in washington soon.

and guess what?! daddy’s coming home tomorrow!! mommy and i are so excited about that! we’ve been missing him, and he’s been missing us too. it will be so nice when we are all together again…

i’m still pretty hungry ’cause the steriods haven’t worn off quite yet. poor mommy gets up almost every half hour all night long to get me food. hopefully we can all sleep the night through again soon.

well, i’d better get my rest so i have as much energy as possible for my physical therapy! nite!

today was a good day and a hard day.

i had my appointment today. while i was there and waiting for the tests, the lady told my mommy that my dna tests did not match the criteria for the low-risk group and that this test did not put me in the low-risk group even if i didn’t have any cancer cells left. i could tell mommy was very upset. i heard her tell them that the doctor had told not just her in passing, but had stopped by twice, once to tell my grandma and once to tell my mommy and daddy that i met all 3 of the necessary dna stuff to have a chance to be in the low-risk group.

the good news is that my platelets are good, my bones are creating good red blood cells and my white blood cell counts are up too i still have to be very careful though. mommy also figured out why i have been having so much trouble with walking and having no strength…2 of the drugs i’ve been taking have side effects and that’s why i’ve had so much trouble. i’ll be taking a break in between phases to see if i’ll get my strength back and be able to walk once the drugs have worn off.

me and mommy are missing daddy lots. i’m so glad he’ll be home on friday!

well, i’m going to go to bed now, nite nite!