April 1, 2007 (phase 1, day #26)
hi there. my daddy left today for his new job in washington state. mommy and i will still be here for a couple more months before we move up there with him. i’m going to miss him so much! mommy and daddy told me what was going to happen, so i tried to spend as much time with daddy as possible before he left. mommy was very sad after he left, and i kept asking her “mommy okay? mommy okay?” she said she was okay and that she just was going to miss daddy so much. i know what she means
but he’s coming home for the weekends, so we will still see him some.
we’re moving to washington state. Jesus gave daddy a new job and found us a beautiful house (auntie melissa calls it the red barn–but it’s really nice!) so we can be closer grandma, papa (grandpa), and more family so they can help mommy and daddy take care of me. i will be getting my treatments at children’s hospital in seattle when we move up there. it sounds exciting and i can’t wait until we’re all together as a family every day again.
the blood transfusion (that i got last wednesday) they said would really help me with my energy and strength hasn’t really made me better at all. the only time it really helped was the next morning (thursday) when i was more talkative. i haven’t walked or done much of anything for so long…i hope they can tell us more and give me something more to help me when we go in on wednesday.
please pray for my daddy at his new job, and mommy and grandma and me here at home. and grandma is going home on thursday–it will just be mommy and me. i’m so glad so many of you are able to make food for us, because i take all of mommy’s time with her holding me and changing my diaper (grandma does that most of the time) and them getting me all the snacks i’m so hungry for since i’ve been on my steroid medicine, and all the other stuff they do to help me be most comfortable and as happy as i can be.
well, i’ve gotta go for now, mommy thinks i’m napping
I’m going to miss you! But this will be a good change for you all. I hope I get to see you before you leave.
Comment by Julie Taber — April 2, 2007 @ 1:53 pm