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May 4, 2007

Update – May 4, 2007 (phase 2, day 10)

Filed under: Latest Updates ~ Cheris Curry @ 2:27 pm

Hi,

Sharmalia’s day at the hospital went fairly well this week. She hasn’t had much of an appetite lately, so she did better then some days with fasting until noon. She of course asked for food frequently, (because she is such a determined little girl) but she didn’t go into hysterics when told “no”. She doesn’t understand why, but i do think she understands that it breaks my heart to not be able to give it to her, and in some way I think that calms her.

The procedure itself went well. She is making friends with the nurses, the nurse practitioners (the ladies who actually do the procedures) and she even liked this anesthesiologist.  However she still doesn’t like “going under”. She always cries when they reach for her port. She came out of the anesthesia like a champ as usual and she did fine with the IV.

Overall, she is doing much better this phase. In contrast to the last set of drugs which caused her to become lifeless (which was terrifying) her current drugs “wire” her. Especially in the evening she flies as high as a kite and it is difficult to get her to bed. For a few brief seconds last night grandma and I missed the lethargic days. Aside from our exhaustion we are incredibly grateful that she is doing so well.

We are looking forward to the weekend and we hope you all have a wonderful Sabbath.

Cheris

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