hi there! i’ve been pretty sick for a while, but i am feeling better now. my immunity is still down, although i’m up to 788 (from 360, but it should be between 1500 and 5000). last week i got chemo in my spine, a push to my heart, but not orally at the doctors. at home i’m down to 50% of the regular dosage because of my blood counts. that will last for a week from last wednesday. i’m still on (full strength) steriods with my last dose today. i have been eating stripples all day and all night–that’s all i really want to eat.
we’re going to the doctor again today to check my blood counts again to make sure they’re still going up, to get an EKG, and an echocardiogram. i always thought those tests were for old people but they say the medicine they’re going to give me during phase 4 will be new medicine and that it has been known to cause heart damage–which is kinda scary for all of us. so they check my heart before they start the medicine to see how it is now.
i was growing my hair back some, about 3/4″ mommy says, but i guess i’ll have to keep working on it since the phase 4 medicine will probably make it fall out again. oh well, i’m still cute without my hair!
mommy and daddy finally got the house in california sold–so they’re very happy about that!
we have a king-size bed out on the back deck. i love to go out there and hang out sitting on the bed. we eat out there, watch nature, read books and talk. it’s really pretty up here.
sometimes i’m not sure who is in washington and who is in california, so it’s kinda hard to know who i will see again soon, and who i won’t. mommy and daddy say aunt “melissa” and “uncle” rick are going to be here soon…that will be lots of fun i like to play with them. welll, actually i like to play with a lot of you
well, we’re almost to the doctor’s now (mommy doesn’t know i have her pda and am writing this right now!). bye bye!