Hi Everyone,

What a week! It has been a roller-coaster as you could probably tell from my last update, but we have ended the week well. Sharmi is 5 days into her intensified dose of steroids. So far she is not overly ravenous for food, but we are lucky that her grandparents had bought a commercial sized box of stripples.  She eats them constantly.

Yesterday she went back into the hospital for her second day of chemo for the week (usually she just gets it once a week.) She had shot of PEG which she hasn’t had since her first week of treatment in March. You may remember that this drug has possible serious neurological side effects including comma. Thank God she seems to be doing fine with it. She was actually pretty dopey yesterday all morning while we were waiting for the treatment. Unfortunately what should have been a quick 2 hour day at the hospital turned into 6 hours. She was fasting which made it even harder when they ran almost 2 hours late.

The drugs have been taking life out of her everyday this week, but last night was wonderful. In the evening when her daddy came home she seemed to snap back. She was laughing, playing, singing and running around. We finally got her to fall asleep around 10:00.

She also had a good day today. She is certainly more tired and needy, but her daddy spent a lot of time with her today and it made for happy times. This also gave mommy time to do dishes. I am embarrassed to say that they pile up. I miss all of you in San Diego who would come by and say, “I have got an extra hour or two how can I help.” It is beautiful up here if anyone wants to come and visit.

Sharmi and Daddy read, “took naps” on the bedroom floor (no actually rest occurred) and they danced around the house. She did this funny “chicken type dance” thing around the house. We think she picked it up from church. This was vacation bible school week at the church so the kids did the program. It just dawned on me that one of the songs had the conga in it. I think this must be what she was trying to do. Of course it was adorable and it was great to see her happy.

It is beautiful up here and we are meeting lovely people, but we do miss our friends in San Diego. Thursday, Sharmi woke up when I drove up to the house and she started crying, “Go home.” I told her that we were home and she cried, “no new home, go home.” She also pleaded with her daddy that night to “go home.” It breaks our heart, but overall we feel that she is doing well with all of the changes.

We appreciate your continued prayers.  We love and miss you all.

Cheris