Busy Holidays
Happy Holidays to all of you. I hope that you are all having a great time with your family and making many life time memories.
We had a wonderful time in San Diego. Sharmi loved flying. The flight went quite well since Dean and I were each able to have an entire row with a kid. Sharmi was charming to the point that an older gentleman thanked me for having the best behaved kids he had ever seen on the plane. This of course made me proud, but I was glad he didn’t fly with us on the way back to Seattle a week later.
We went to the Zoo, Wild Animal Park, Lego Land, Sea World, spent a day with Dean’s family, and we also spent a wonderful day with our church friends. Sharmi was very excited about going to her old church. She sang her favorite song “The Big Red Bus” all the way there. I unfortunately never learned the song by heart, and so Sharmi has not heard “The Big Red Bus” since Dave and Jason sang it at the Cancer walk last spring. After the closing song Dave lead the congregation in singing it in honor of Sharmi. It was very special to me and she just loved it. She sang it as loud as she could in the car after church. Why is it that children seem to think that they are supposed to sing at the top of their lungs in the car?
Another priceless experience was at Sea World. Sharmi has been asking to go to Sea World since we left California. She loves to feed anything that she can, so we were going to let her feed the dolphins. I mis-read the schedule for feeding times and so we just missed it. I felt really bad and Sharmi was asking to feed them so I told them Sharmi’s situation and asked if we could buy still buy a few fish. After a little bit more discussion a trainer came out with a bucket of fish and took us over to a roped off area. The dolphins saw us coming and were so excited. I expected 4 fish for $4, but instead we got a mini interactive session for free. We were able to touch them, Sharmi fed them, and they talked, squeaked, waved and jumped for us. It was an incredible experience. When Sharmi talks about it she even does the hand signals that the trainer used. God made incredible creatures. In heaven I am going to have a river flowing through my mansion with dolphins in it.
Christmas blew by too fast to really enjoy and the day after Christmas we took Sharmi to the hospital again. She got chemo in her heart and in her spine again, and she started another series of steroids. Dean went with us this time and it was wonderful for all of us. It had been a month since we had been there and it is always hard to go back. Sharmi and I needed the moral support. We hadn’t told her directly that we were going back to the hospital, but she must of heard us talking to the family about it, because when Dean laid her in bed Christmas evening she said, “I am going to sleep good tonight and be rested because I have to get up and go to the hospital in the morning, and the people will put it in and take it out” (referring to her port). She doesn’t miss a thing.
In the procedure room the staff was talking to us as they were preparing things, and the anesthesiologist marveled at Sharmi and kept saying, “She is such an Adult.” The nurse practitioner, who she sees in clinic frequently kept saying, “She has always been like that.” They were amazed at her and I didn’t notice anything strange. She was just sitting on my lap quietly waiting. Maybe that is strange considering what these kids have to go through. After she was “under” Dean asked me if I ever got used to the feeling of our baby going limp in my arms. I had to answer, “no”. It is common now, but it is still hard. This time when she was falling asleep she kept trying to tell me something, but she was talking so soft that I couldn’t understand her. It was a very helpless feeling. I felt like I was letting her down.
It is hard but we can faintly see the end now. On our drive down we calculated that we should only have about 16 more procedures (where she is put under for her chemo) until she is done in May of 2009. We can make it.
Well, we are going to go and try out papa’s new hot tub, so I hope you all have a wonderful New Years.
Love the Curry’s